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How can you become a state representative? Regarding other symptoms I can’t help you but I’m sure others can. I met with my hematologist today and he said autoimmune diseases (as per the ANA result) typically result in low platelet counts. Registered charity: 118829803 RR 0001, Caring for yourself during radiation therapy, Understanding the trial and informed consent, Choosing a complementary therapy and practitioner, International Cancer Information Service Group, chemotherapy drugs, biological therapies or other drugs, radiation therapy to the pelvis or to a large amount of bone marrow, tiny red spots, or petechiae, under the skin, a lot of or long-lasting bleeding from a small cut or injection site, blood in the urine, which may look pink, red or brown, blood in the stool or black-coloured stool, vomiting blood or something that looks like coffee grounds, vaginal bleeding that is different from and lasts longer than the normal menstrual period, constant headache, blurred vision or change in level of consciousness, blood tests to check the level of platelets as well as bleeding and clotting times, bone marrow aspiration and biopsy to find out the underlying cause (if not already known). Why don't libraries smell like bookstores? For 10 years prior I’d been having visual disturbances/silent migraine. What it is the inmate address at newton Iowa work release correction? I wonder if this is connected? My platelet count would have to be 1 million and above to experience symptoms. If you can’t apply pressure to the area, hold ice water in your mouth or suck on a popsicle or ice cubes until the bleeding stops. How long will the footprints on the moon last? ET: Platelets are 940, These episodes l believe in my particular circumstances are more linked to poor breathing when l stress or panic, They become stronger if l ruminate on something. Transfused platelets only last about 3 days, so some people may need more than one transfusion. He also said that I wouldn't be having any symptoms related to ET with my platelet count in the high 400's, low 500's. This may include asking questions about your symptoms, any medicines you take and treatments you’ve had. Hold a clean dry cloth against the cut for at least 10 minutes. He also said that I wouldn't be having any symptoms related to ET with my platelet count in the high 400's, low 500's. Yes. They seem to suggest that my symptoms are all related to anxiety because my platelet counts "aren't that high". All Rights Reserved. A platelet count below 10,000 is considered severe thrombocytopenia. Your doctor will try to find the cause of thrombocytopenia. Thrombocytopenia is usually diagnosed by: It may be difficult to prevent thrombocytopenia caused by cancer or chemotherapy. If nothing comes up from those, I'm going to go and see a functional medicine doctor I know of who is good at looking at all of your symptoms together, instead of trying to isolate symptoms to a specific bodily system. Did the bath help? Check with your healthcare team before using any complementary therapy that uses pressure or massage techniques, such as acupuncture, shiatsu, yoga or chiropractic therapy. My platelets have been in the 600s, but I also have leukocytosis and very high basophils. Welcome! Symptoms of Low Platelet Count. I have ET calr, platelets around 600, symptoms quite heavy. The healthcare team may also give medicines to help the body make more platelets. Generally, a count that is over 500,000 platelets per microliter of blood is considered high enough to seek the underlying cause, notes Mayo Clinic. Rinse and brush your teeth after you eat. Be extra careful when using a knife or any type of sharp tool. Check with your healthcare team before having any dental work done. my first 30 days.on 500mg of HU.Had increased shortness of b... High platelet count? Have a good day!! X. I thought I was the only one to experience symptoms with platelets in the 500. Avoid straining during bowel movements. Best to you. If cancer causes low platelet counts, every attempt is made to treat the cancer. Platelets run around 435 now. My question is does anyone here experience symptoms like mine with platelet counts in the high 400s, low 500s? I have achy burning sore hands/fingers with slight swelling and redness. I had to have a warm bath to ease the pain. I didn't really have any symptoms back in September/October other than a prickly feeling all over. Ask your healthcare team if any precautions should be taken during sexual activity when platelet counts are low. 1. 1, 4, 9 . Your doctor will also do a physical exam. The following cancer treatments can also affect the bone marrow and lead to a low platelet count: People can also develop thrombocytopenia if the spleen is enlarged (hypersplenism) or if cancer spreads to the spleen. Good luck. ER Calr 1 diagnosed 2 years ago and take Hydroxyurea 500 daily with baby aspirin. Platelets are also called thrombocytes. What If You Have Low Platelet Count. I don't think the anxiety is causing my symptoms, but the symptoms are definitely causing some anxiety for me. These are called growth factors. Well, yes, I do have some anxiety now because I'm not feeling well, but as I said, prior to September/October, I felt fine. Prior to that and now, I have had headaches, dizziness, cold and numb toes and sometimes hands, chest pains and acute bone pain especially in front thighs--my platelets are only 487 and I am on 81mg, aspirin. What are all the codes for Danny phantom the ultimate face-off? We will reply by email or phone if you leave us your details. In my experience, the symptoms that you are describing were evident for me also before I had my first TIA, (minor brain stroke). Lift the area above the level of the heart if possible. Best of luck to you. The number of tests still to be done seems to be dwindling, so hopefully the CT scan and/or bone marrow biopsy will provide some clarity. Hold a soft cloth or an ice pack on the area with gentle but firm pressure for at least 10 minutes. It’s when I read other ET patients descriptions of what those symptoms FELT like that I KNEW the symptoms I had were related to ET. Bend your knees and squat instead of bending over. My platelet count would have to be 1 million and above to experience symptoms. So your dr. Is 100% wrong about only having symptoms of way higher. Some labs represent this number as 150-400. It can take a long time to get a diagnosis but your experience is not unusual. ET with CALR mutation. You can try the following to help prevent bleeding or bruising if your platelet counts are low. Medicines may be given before a transfusion to reduce a fever and clear up an infection so the body doesn’t need as many platelets. When chemotherapy causes low platelet counts, the dose may have to be lowered or the length of time between chemotherapy cycles may have to be longer. His blood test results came back with him having a platelet count of 1 million. A normal platelet count is between 150,000 - 400,000 platelets per microliter (mcL). Has your doctor done blood work to test for gene mutations often found in MPN patients? Anagrelide? Symptoms of thrombocytopenia usually don’t develop until the number of platelets is very low. I have been trying different techniques sport really helps and l practicing breathing. Since ET diagnosis I’ve read 4 descriptions from MPN patients that IDENTICALLY mirror my experience - the exact location, shape, appearance & duration of the visual disturbance. I definitely know you can have, symptoms even if your platelet count isn't high. Keep a record of your symptoms and review your "lifestyle" (smoking, drinking, food, sleep, activity levels etc). Apply a moisturizing lotion regularly to keep the skin moist. I have had severe symptoms including headache for a year today.... and extreme fatigue.... I’m under guys and it has been explained to me symptoms are not to do with numbers it’s how your body copes with the diagnosis.... someone could have 1 mil platelets and have no symptoms but someone like me who has readings from 450-650 and have symptoms. My platelets are only just above 500 and I just have tingling in fingers occassionally. I wonder if it’s unique to Calr mutations. Do not apply a tourniquet to control bleeding because this can cause permanent tissue damage. CCS adapting to COVID-19 realities to support Canadians during and after the pandemic. Press a cold cloth on both sides of your nose continuously for 10 minutes. Drink plenty of fluids and eat enough fibre to avoid constipation. Thrombocytopenia may develop if the bone marrow isn’t working normally and doesn’t make enough platelets. Here is a link to an article that indicates that many people do have a variety of symptoms: I'll provide updates once I know more about my situation. Copyright © 2020 Multiply Media, LLC. However, my Platelets have always struggled to become reduced, and I have had two (2) TIAs. It is such a relief to know that Guys made the point about the numbers that you mentioned. Aspirin and more water seem to be helping. Some labs represent this number as 150-400. Wear protective gloves when working in the garden or near plants that have thorns. I wake up in mornings so sore. Results won't be available for 4 weeks though. I’m afraid I suffer with a little anxiety now it’s because I don’t do or think about things as fast as I used too in turn I can’t cope because of my fatigue. Fever and infection can increase the body’s need for platelets. How much will a midwifery schooling cost? Use oven mitts instead of pot holders to remove hot items from the oven. Interleukin-11 is an example of a growth factor. Do not use rectal suppositories, enemas or rectal thermometers. In which Olympics was the first tennis match played? Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them. These medicines may contain aspirin or other drugs that can weaken the platelets and make bleeding problems worse. I have platelet levels like you right now but I have no other symptoms. Thanks for the update and comment, Dazakella2010, My platelets are around 7-800,000 with fatigue, ringing ears, erythromelalgia, constant headaches and bone pain. Having said that, he will be do a bone marrow biopsy in a week's time to check. I am sooo pleased to read your post. Elevated platelet count is not uncommon in patients with sideropenic anemia (group of anemias marked by low levels of iron in the plasma), specifically iron deficiency anemia. Although elevated platelets is a feature of some MPNs it can be the result of other conditions. If you can easily reach the bleeding area, apply gentle pressure until it stops.

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